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2:59
YouTube
PinkNews
TikToker’s Miracle Survival Story #shorts #tiktokinfluencer #fontaineprogeroidsyndrome
TikToker’s Miracle Survival Story #shorts #tiktokinfluencer #fontaineprogeroidsyndrome Meet Kenzie, a 26-year-old influencer and one of just 13 people in the world living with Fontaine progeroid syndrome. With over 680,000 followers on TikTok, she shares get-ready-with-me videos, cooking content, and moments from her daily life — all while ...
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As of December 2025, this is where the 156 children and young adults with Hutchinson-Gilford Progeria Syndrome (HGPS) live, all with a progerin-producing mutation in the LMNA gene; and 83 people in the category of progeroid laminopathy (PL), who have mutations in the lamin pathway but do not produce progerin; in a total of 51 countries. Want to learn more? Visit our Find the Children website page: https://www.progeriaresearch.org/find-the-children/ 💙 Help The Progeria Research Foundation (PRF)
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