I've been blogging for a few years about misophonia, an auditory/neurological disorder that I have advocated for because I and (more importantly) one of my adult children are affected. Recently, at ...
Your muscles need continuous maintenance to stay strong and healthy. Duchenne muscular dystrophy (DMD) happens when there is a change in a person's genetic instructions that affects the production of ...
Duchenne muscular dystrophy (DMD) is a genetic condition caused by a change, or mutation, in the DMD gene. This gene normally tells the body how to make dystrophin, a protein that helps protect ...
The first gene therapy for children with Duchenne muscular dystrophy has been approved by the U.S. Food and Drug Administration. The therapy can be used in 4- and 5-year-olds with the degenerative ...
I’ve been fighting Duchenne muscular dystrophy for 40 years.
Working with Parent Project Muscular Dystrophy and the Duchenne Registry on patient identification and trial awareness efforts ~15,000 children ...
When judging Duchenne treatments, functional outcomes and long follow-up matter most. Earlier treatment offers the greatest chance to slow progression and preserve muscle function. In this Healio ...
Lousin Mehrabi is a negotiation professional, inspirational speaker, trainer and advisor in negotiations, emotional intelligence and leadership. She is also the mother of Alex, 11, who has Duchenne ...
Crews with the Catoosa County Fire Department are collecting donations for the Muscular Dystrophy Association through their annual “Fill the Boot” campaign. You can find firefighters outside the ...
Born with a rare form of muscular dystrophy, Peri Finkelstein has never let her disorder define her. Instead, the 24-year-old New Yorker has used her challenges as a springboard to make the world a ...
Over 400 Burn Boot Camp locations in 44 states will come together to help raise funds and awareness for the Muscular ...